Our goals are to educate, empower, support, and improve the lives of individuals and families of children with epilepsy, food allergies, and childhood cancer.


Big brother Grant is 9 years old. At age 2 he had a seizure while asleep prompting an emergent trip to ER which including a hospital stay, EEG monitoring, and an MRI. This was followed by 2 years of seizure medications, additional EEGs and MRIs, and close follow up with a Pediatric Neurologist. Thankfully workup was unremarkable and Grant has remained seizure free for over 5 years and felt by his Neurologist to have outgrown his epilepsy. Did you know epilepsy is the most common childhood brain disorder. Over 60% of children diagnosed with epilepsy will outgrow it by their teenage years. 1 in 26 people will develop epilepsy at some point in their lifetime.

In addition to epilepsy, Grant was found to have central precocious puberty at age 6 requiring intramuscular hormone injections every three months. Etiology is thought secondary to brain injury stemming from a complicated birth versus side effect of epilepsy. Once he approaches age 12 Lupron shots will be discontinued.

Any questions, our resident expert Grant would be happy to answer.