EPILEPSY

Our goals are to educate, empower, support, and improve the lives of individuals and families of children with epilepsy, food allergies, and childhood cancer.

GRANT’S STORY

Big brother Grant is 9 years old. At age 2 he had a seizure while asleep prompting an emergent trip to ER which including a hospital stay, EEG monitoring, and an MRI. This was followed by 2 years of seizure medications, additional EEGs and MRIs, and close follow up with a Pediatric Neurologist. Thankfully workup was unremarkable and Grant has remained seizure free for over 5 years and felt by his Neurologist to have outgrown his epilepsy. Did you know epilepsy is the most common childhood brain disorder. Over 60% of children diagnosed with epilepsy will outgrow it by their teenage years. 1 in 26 people will develop epilepsy at some point in their lifetime.

In addition to epilepsy, Grant was found to have central precocious puberty at age 6 requiring intramuscular hormone injections every three months. Etiology is thought secondary to brain injury stemming from a complicated birth versus side effect of epilepsy. Once he approaches age 12 Lupron shots will be discontinued.

Any questions, our resident expert Grant would be happy to answer.